I have a rare disease called VHL or Von-Hippel Lindau--this is a cancer-suppressing gene and those people who have VHL disease have a mutation, turning you into a tumor-producing factory.
In my case, blood-filled tumors form in up to 10 organs of the body.
The only treatment is the removal of tumors, irradiation, and monitoring but unfortunately, multiple tumors formed in the liver which splayed, compressed, and displaced vital vessels and I had a liver transplant leading to turning off of the immune system.
The side effect in question? These medications may increase your risk of infection.
This almost implies that if you are taking some of these medications you will fall ill every time you pass by someone with the sniffles along with the big stuff, like the flu or tuberculosis, or end up with Covid.
I was diagnosed with leptomeningeal hemangioblastomas after the cyber knife in 2013.
Between 1902 and 2013, approximately 132 cases have been recorded.
Detecting and treating the condition of leptomeningeal hemangioblastoma without delay seems to help survival, though the number of patients analysed is small. The most common cause of death is respiratory failure due to pontomedullary or cervical cord compression.
I have no income. I write for Times of India digital without honorarium and my mother who is a pensioner draws barely enough pension to feed and clothe us, leave alone pay for my medical expenses. Friends who think I am worthy of life more than expected and write more donate for my medicine and the rest of my survival needs
Currently I am suffering from a serious multiple brain tumor perhaps I am the first one in India. The small tumors floating around in the fluid used for cushioning the brain and spine tend to compress all the nerves that come their way. Hence the first nerve to be compressed was the optic hypothalamic nerve which made me blind with my right eye even after killing radiation therapy.
I got a swallowing problem. The cranial nerves associated with the swallowing process are the trigeminal (V), facial (VII), glossopharyngeal (IX), vagus (X), accessory (XI) - usually not considered - and hypoglossal (XII).
After 2017 I also have a chronic ischemic brain. Cerebral ischemia or brain ischemia, and when there isn’t enough blood flow to the brain leading to limited oxygen supply it may lead to the death of brain tissue, or ischemic stroke.
The electrons can be made to strike a tungsten target within the head of the accelerator to create a beam of photons (or “X-rays”). These X-ray beams are then directed at the site of cancer. Photons have no charge or mass and can be regarded as small packets of energy. Photons deposit their energy along the entire path that they travel through the body. Therefore, a beam of X-rays irradiates not only the area of the tumour but also the healthy tissue that the beam encounters on its way towards the tumour and beyond the tumour. X-rays used for treating cancer usually do not stop within the body. X-rays travel right through you. On the other hand, proton beam therapy is delivered by larger, much more expensive accelerators called cyclotrons and synchrotrons.
A proton beam directed at a tumour travels in a straight trajectory towards its target, gives off most of its energy at a defined depth called the Bragg peak, and then stops. While X-rays often deposit more energy within the healthy tissues of the body than within the tumour.
The mutation of the gene is confirmed in AIIMS research.
There were multiple cysts in the pancreas already. They blocked the exocrine functions ( enzymes) and for a couple of months I had to run to the bathroom after every meal. After Creon SD microgranules were prescribed my diarrhea feels better but you can confirm it is around Rs 3000 and lasts for only 2days.
These tumors are extremely vascular. A biopsy would make them bleed resulting in tumor cells spillage, resulting in more tumours and meningitis.
VHL is a tumor suppressor protein that is localized in the nucleus or cytoplasm, the extent to which being dependent on cell density.
The hypoxia-inducible transcription factors have also been shown to play a crucial role in tumour promotion in other cancers including breast, brain, colon, gastric, lung, skin, ovarian, prostate, renal, pancreatic. Increased levels of growth factors result in angiogenesis.
The will to live is an unstoppable thing. Most people live only when they are about to die.
After 15 surgeries including kidney cancer apart from the above-mentioned Liver transplant I want to survive my life threatening condition.
I, who swam the seas with vigor, without any complaint, felt the warmth of sunshine in the emptiness of my life, from the quest for knowledge I got to know more about my diseases.
My request is to help me according to your preferences and ability.
Life has many pretty song
Physically weaker with mind strong
My eager combat and real fight
For what's wrong from what's right
Thoughts swirl in my mind
I seek till I find
As thoughts entwined
I write what conquer my mind
Till my eyes go blind
The more I express my unquenchable thirst for life
In my troubles and strife
Under a surgeon's knife
Countless times
Chasing me throughout my life
But the helpful plunging knife
Longer my life
Did you ever see such a thing in your life?
To overcome the tragedies,
To survive the hardest times.
To face those moments filled with pain,
And to manage I need the kind
With the protectors' mind
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