Saturday, December 19, 2020

Leptomeningeal hemangioblastoma Part-2





Supratentorial hemangioblastomas (HBLs) are rare, benign vascular tumors of the central nervous system neoplasms. 


Very scarce literature is available regarding supratentorial HBL without von Hippel–Lindau (VHL) syndrome in an adult. 


Being a rare entity, not much clinical data is currently available regarding supratentorial HBLs, thus necessitating the need for further reporting and review of such cases.




  • A 40-year-old male patient presented with a headache, weakness of left side body for the past 6 months, and seizure since 2 months. 

There was no history of any inherited disease or cancer in his family. He was well orientated to time, place, and person. 

Abnormal physical signs were limited to the CNS. Neurological 

examination revealed decreased the power of 4a/5 in both left 

upper and lower limb with no sensory involvement. The tendon 

reflexes were normal and plantar responses flexor.



  • A 55-year-old woman presented with severe headache and 


dizziness in 2010 showing a large cerebellomedullary well 


enhancing tumor and a small homogenously well enhancing 


tumor at the left medial temporal base on MRI . 


She underwent a surgical resection for the large cerebellar 


mass and the pathological diagnosis was HB. She had 


no family history of VHL disease, and the evaluation for VHL 


disease was negative. Because the radiological features of the 


left temporal lobe tumor were compatible with meningioma, 


we initially thought that the patient had a sporadic form of 


HB. Postoperative course was uneventful but one month after surgery, she complained of neck pain and was investigated with 


spine MRI. The spine MRI showed multiple enhancing nodules 


in the cervico-thoracic spine and the patient was 


included in the criteria for the diagnosis of VHL disease. 


Although her neck pain was relieved soon after the spine MRI, 


we advised her regular follow-up for the left temporal tumor 


and the intraspinal tumors. Unfortunately, she had been lost 


to follow-up until December 2014, when she complained 


diplopia, left facial hypoesthesia and truncal ataxia. On the 


brain and spine MRI, multiple enhancing tumors were observed 


in the bilateral cerebellopontine angle, prepontine cistern exten 


ding to the suprasellar cistern, left parasellar area, and the 


leptomeninges around the whole spine. She under-


went surgical resection for the markedly enlarged left medial 


temporal tumor.


  • Only two dura-based3,5 and two leptomeningeal hemangioblastomas have been documented. The authors describe a 10-year-old girl


who presented with warm sensation in her face, blurred bilateral


vision, loss of consciousness, and loss of sphinter control. Medical


and family histories were unremarkable, neurological deficits were


absent, and laboratory findings were normal. 




Supratentorial HBLs, which are quite rare,were first 


described by Bielschowsky in 1902.They are most commonly 


found in the frontal lobe of the cerebrum followed by parietal 


and temporal lobe. There is a handful of reported cases of 


congenital HBLs.




Till date, approximately 139 cases of supratentorial HBLs have been 


described in the literature.




Gamma Knife radiosurgery (GKRS), 15% tumors were stable 


in volume, 54% decreased, and 31% increased. Local tumor 


control rates at 1, 5, and 10 years was 89%, 74%, and 50%, 


respectively. There was a trend toward tumor progression in 


sporadic patients (P = 0.10), women (P = 0.09), and larger 


tumors(P = 0.10). In patients with multiple HBLs as compared 


to those with only a solitary HBL, the radiosurgically treated 


lesion was 7.9 times more likely to progress after GKRS 


treatment (P = 0.018). They concluded that stereotactic 


radiosurgery offers a reasonable rate of tumor control and 


preservation of neurologic function in patients with HBLs, but 


patients with multiple HBLs are less likely to exhibit long-term 


tumor control of treated lesions following radiosurgery.




However, which treatment modality is most definitive in 


supratentorial HBL is not yet known because of the rarity of 


this tumor and available literature. MRI is recommended as 


regular follow-up for sporadic supratentorial HBL. Complete 


resection of hemangioblastoma is curative and is associated 


with minimum morbidity and 2% mortality.



On reviewing the literature, it was found that 


supratentorial HBL affected patients ranging from 3 months 


to 80 years with maximum cases belonging to 20–30 years 


and 40–50 years age group. Among the infants, only one 


case was found, thus making it a rare tumor in infancy. Most 


of the cases were found in males. The reported cases either 


presented as isolated or multiple lesions. On analyzing the 


tumor consistency, it was found most of them were solid whereas 


only less than one-third were cystic. In this review, we found 


supratentorial HBL in various locations viz., frontal, parietal, 


temporal, occipital, third ventricle, lateral ventricle, pituitary, 


pituitary stalk, suprasellar, hippocampus, falx cerebri, corpus 


callosum, meninges, and choroidal fissure.





The current available treatment did not have a significant 


effect on the progression of the hemangioblastomatosis in 


reported cases. Conventional radiotherapy or stereotactic radio-


surgery was often used for disseminated lesions, however,long-term tumor control was not achieved and it is difficult to perform high-dose radiation therapy or radiosurgery for numerous lesions scattered throughout the entire neuraxis. Some studies reported notable achievements in the treatment of hemangioblastomatosis using growth factors antagonist or blocker, such as sunitinib or erlotinib, but long term disease control was not achieved. We used several cycles of bevacizumab and the patient’s neurological condition improved significantly. Long term follow-up was not established and further 

investigation is needed.







In HBLs, first and second peaks of incidence are in the third 


and fifth decades of life respectively. HBLs are more common 


in males than in females (1.3:1 ratio). They may be either 


asymptomatic or symptomatic.


Clinical characteristics of supratentorial HBL are specific to 


their location and growth patterns. They are benign lesions 


thus sign, and symptoms manifest late.Patients usually have 


no history or the long history of minor neurological symptoms. 


In maximum cases, it presents as sudden onset of neurological 


symptoms demanding neurosurgical intervention.




The exact mechanism of hemangioblastomatosis is unknown. 

There are fourteen published cases on hemangioblastomatosis 

and 11 cases had no relationship with VHL disease. The disse-

mination of HB in all reported cases occurred after surgical 

resection. Accordingly, the spillage and spread of tumor cells 

through the cerebrospinal fluid(CSF) space are the mainstreams 

that explain the dissemination of HB4)




Intracranial hemangioblastomas are rarely located in the supratentorial region, such as the pituitary

stalk and anterior lobe of the pituitary gland,

hypothalamus, corpus callosum, wall of the third

ventricle, temporal horn of the lateral ventricle, and

meninges.3,6) Multiple hemangioblastomas are rarer

in supratentorial (3%) than in infratentorial regions

(11%).7) Previous cases include a case of supraten-

torial multiple hemangioblastomas, two dural cases

identified by MR imaging, and three cases identified

at operation.The origin of hemangioblastomas is uncertain, but the presence of endothelial cells, pericytes, and stromal cells with hypervascular structures is thought to indicate derivation

from the dural vascular structures as in our case.

Dural involvement can be seen in posterior fossa

hemangioblastomas, especially in recurrent cases.

Supratentorial hemangioblastomas usually become symptomatic in the third and fourth decades of life with male predominance. Supratentorial hemangioblastomas generally manifest as symptoms

of intracranial hypertension, epilepsy, especially in meningeal localizations, hemiparesis, hydrocephalus, and intracerebral and subarachnoid hemorrhage.


The outcomes after dissemination were very poor and most patients died within 3 years of diagnosis. The most common cause of death was respiratory failure due to pontomedullary or cervical cord compression.




If tumor cells dislodge from the primary site in the fourth ventricle, the majority of them will descend along the CSF flow to the spinal subarachnoid space and then ascend to the supratentorial subarachnoid space.




Hemangioblastomas have been reported at various locations in the central nervous system. Supratentorial


hemangioblastomas are extremely rare. Between 1902 and


2013, approximately 132 cases of supratentorial hemangioblastomas were reported. Approximately seven cases of


isolated dural-based tumors were reported before


2007.


Ref:






Supratentorial haemangioblastoma without von 


             Hippel–Lindau syndrome in an adult: A rare tumor 


            with review of literature


            Sharad Pandey, Vivek Sharma, Deepa Pandey, Vikul Kumar,            Mohan Kumar2


Departments of Neurosurgery and 2


Pathology, Sir Sunderlal Hospital, IMS, BHU, 1


Department of Clinical Microbiology, Central 


Hospital, DLW, Varanasi, Uttar Pradesh, India




A Very Aggressive Hemangioblastomatosis Without VHL Gene Mutation


Jeong Goo Park, Sang Woo Song, Young-Cho Koh


Department of Neurosurgery, Konkuk University College of Medicine, Seoul, Korea


Hemangioblastoma of the central nervous system may arise as sporadic lesions or as a manifestation of von Hippel-Lindau 


(VHL) disease. Hemangioblastomatosis, a disseminated form of hemangioblastoma, is an extremely unusual type of the 


disease which had been reported mainly in non-VHL disease. It is known to exhibit similar clinical features. Most patients 


underwent surgical resection of the primary lesion, and hemangioblastomatosis developed after variable intervals. Because 


there is no specific treatment, it has been reported very poor prognosis. A 55-year-old woman initially diagnosed as sporadic 


hemangioblastoma because satellite left temporal mass was considered as meningioma and evaluation for VHL disease 


including VHL gene study was negative. 3 years later, she diagnosed as disseminated hemangioblastomatosis and resected 


left temporal mass was diagnosed as hemangioblastoma, which was compatible with VHL disease. We report a rare case 


of hemangioblastomatosis in a VHL gene negative woman with some beneficial effect of bevacizumab.




Neurol Med Chir (Tokyo) 46, 294¿297, 2006


Parasagittal Leptomeningeal Hemangioblastoma


—Case Report—


Murat COSAR, Mustafa Aziz HATIBOGLU*, A. Celal IPLIKCIOGLU*,


and Deniz OZCAN**


Department of Neurosurgery, Afyon Kocatepe University, Afyon, Turkey;


Departments of *Neurosurgery and **Pathology, Okmeydani Training Hospital,


Istanbul, Turkey




CASE REPORT


Supratentorial leptomeningeal


hemangioblastoma resection after


preoperative embolization


Ching-Yi Lee a


, Shiu-Jau Chen a,b,


*


a Department of Neurosurgery, Mackay Memorial Hospital, Taipei, Taiwan


b Department of Medicine, Mackay Medicine College, New Taipei City, Taiwan


Received 12 August 2015; received in revised form 12 October 2015; accepted 10 November 2015




Leptomeningeal hemangioblastoma


Case illustration


CLAUDIO AGOSTINELLI, M.D., FEDERICO RONCAROLI, M.D., ERCOLE GALASSI, M.D., BRUNO BERNARDI, M.D., 


NICOLA ACCIARRI, M.D., AND GIOVANNI TANI, M.D.


Departments of Oncology, Section of Anatomic Pathology, and Neuroscience, Sections of Neurosurgery and Neuroradiology, Bellaria


Hospital; Department of Neuropathology, Division of Neuroscience and Psychological Medicine, Imperial College, Faculty of Medicine,


London, United Kingdom; and Institute of Radiology, St. Orsola Hospital, Bologna Italy




Case Report


A report of supratentorial leptomeningeal


hemangioblastoma and a literature review


Hiroaki Takeuchi, Norichika Hashimoto, Ryuhei Kitai and Toshihiko Kubota


Department of Neurosurgery, Faculty of Medical Sciences, University of Fukui, Fukui, Japan





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