An appeal to Golf links residency dwellers

 I had a liver transplant owing to several tumors in the liver which could not be taken out individually causing excruciating pain due to frequent hemorrhages in 2008. The largest lesion caused splaying of the portal vein around the lesion. Hepatic veins were compressed and displaced by the segment 4&8 mass lesion. I had two episodes of bleeding and in the last one asked the doctor to get euthanasia done. Bleeding in the hemangioblastomas required hospitalization and was excruciatingly painful.

I was diagnosed with a rare disease von Hippel-Lindau or VHL . It is a genetic form of cancer VHL patients battle a series of tumors throughout their life. VHL may occur in up to 10 organs of the body also there is a possibility of neuroendocrine tumors.

I had a cyberknife six months after which I was diagnosed with leptomeningeal hemangioblastomas.

Next I had a radiation therapy for my optic nerve tumour and a RCC. I was diagnosed at the same time. 

I have a rare disease HypoPara

Leptomeningeal hemangioblastomas ...between 1902 and 2013, approximately 132 cases were reported...Ga-DOTANOC PET-CT based SSTR imaging because VHL syndrome associated hemangioblastomas frequently express SSTR confirmed the true nature could be seen and the diagnosis. 

I had 2 surgeries here in this flat by Dr Arvinder Singh Soin in 2016 end of the year

But we never asked for help. We are staying here since 2016.

Then after the radiation therapy 2017 I developed chronic ischemic brain and bilateral trigeminal neuralgia followed. 

I get stabbing pain because 

I got a cyberknife of the right side of the bilateral trigeminal neuralgia. From HCG Cancer Institute Colaba Bombay, because Delhi doctors wanted a biopsy of the multiple tumors and it isn't required because it will cause meningitis, blood loss thereby cell-spillage. ( According to Dr. Ishita sen of FMRI)

Now I have a swallowing problem and my tongue doesn't move properly. My voice has changed and from March 18/2020 till now I have lost over 10 kgs.

My immunosuppressants have been converted from capsules to oral solutions for which I have to pay extra. My food has to be nutritious yet liquid or puree variety so that I can eat something. Till I get my next stereotactic surgery I have to depend on a lot of other medicines.

Helping thy neighbor is helping those in need even if they don't live next door.

This is my plea to consider my struggle and my multiple rare diseases. Consider the society charge in this all-engulfing pandemic where my brother is jobless and considering my medicines and treatment donate little in the fundraiser. 

https://milaap.org/fundraisers/support-payel-bhattacharya-1?utm_source=whatsapp&utm_medium=fundraisers-footer

Payel Bhattacharya

Flat 502

Block D2A