Have you ever said, "I'm fine, very good when you weren't because most people don't understand?"
I was diagnosed with a rare disease von Hippel-Lindau or VHL. VHL may occur in up to 10 organs of the body also there is a possibility of neuroendocrine cancer.VHL is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. Tumors can develop in the brain, spine, retina, kidney, pancreas, adrenal gland, inner ear, reproductive tract, liver, and lung. Lack of timely intervention can often lead to morbidity and mortality.
All people with VHL disease should be carefully followed by a physician or medical team familiar with the disorder.
The will to live is an unstoppable thing. Most people live only when they are about to die.
There's a problem here.
Most Indians pooh-pooh vHL but when cells perceive a lack of oxygen (hypoxia), such as through a defect in the tumor suppressor gene (VHL), the transcription factor, HIF (Hypoxia-Inducible Factor), is not allowed to bind to the VHL protein. HIF is thus protected from degradation.
The research professionals and members of the medical community around the world to better understand the VHL gene and its impact on cancer development. The outcome is Belzutifan (MK-6482; PT-2977)
As stated by Dr. Kaelin, “When you are studying about von Hippel-Lindau disease, you are not just studying about [the] …. disease … you are also now touching other diseases as well, where we can use the VHL gene to understand what is happening.” As such, the understanding of HIF involvement in tumorigenesis provides hope for the 40% of the world’s population who will be diagnosed with cancer at some point in their lives.
The unusual birth of the eye-catching child of fond parents after a miscarriage and foetus getting problems while in the womb, were lost in the thought that behind the outer shell there might lurk some sickness never known to humanity and the ill-fated, ill-starred child would have to endure the worst in all walks of life and face countless challenges my parents never thought of that.
.From my early childhood, Mum became a vital and integral part of my life, the magic charm of my gloomy and solitary life. She has always made me feel so special.
Faces beshrouded 'neath a mask; I can't shun curiosity, and I wear a grinning mask.Pretending to be what they truly are. You don't need to look too far.
Born with a soul of a mermaid who could only suffer pain since mermaids have no tears I suffered more acutely. My heart was like a sponge, sucking up feelings and emotions, even pain. Only Mum could understand my unsaid words.
I have spent a lot of time in recent years trying to forget unnecessary things so that I will have room in my brain attic for some things that may be more useful. For instance, I have forgotten the longest word in the English language-- “pneumonoultramicroscopicsilicovolcanoconiosi”, or was it, “floccinaucinihilipilification”¨?
and what these terms mean but I can never forget those wretched smiling faces on the balcony. My father called the ambulance at night due to my pain because of a hemorrhaging liver and took me to the hospital and it's that view, when I looked up to the balcony above that has clung to my memory forever like flies in flypaper.
Uncle, aunt and the Didi singer at Kolkata who tried to swat her out of the way like a fly sitting on the wall can be easily swatted with a rolled-up magazine.
From childhood, I have not been as others were,I never enjoyed hop-skip-jump days that's for sure.Being a sick girl looking for the doctor's cure.Do you ever wonder just what God requires? Given just one life to face things where everyone conspires. Without any play-fellow at school thinking I am in need of some solicitude against the deluge of solitude.Parental solicitude was quite tireless.Father wasn't tough and prepared. With faith 80% heart's blockage gasping for air. His efforts nobody in the world could compare.Gave her daughter a new lease of life. Soon the commander, solver of every problem died, and the Warrior Princess was born, to face this life because life is not eternal neither do I have any option for mountains of books, chocolate bearing trees and rivers of coffee. I have to face this life head on.
My father perished soon after the transplant and my foxy uncle took our house from us and we were left penniless and homeless. It was then that my real tough times began and we had two choices ...death or preservation of life.
A lost breadwinner, now who will bring a small bit of bread?Faithful bruvver of mine.Who had sworn, so I will be fine,affectionately said "There were many generous people who could do the duty, perform the responsibility he had sworn ardent, answering commitment to his father before his admission to FTII.
I can't care for you because I have a wife,I will look after you just a little later. After your death in the next life."
"I will do my duty after your death.When leaving sweet memories to ease away pain you step into the afterlife"
In the rhythm of ebb and tide of eternal time
I got my ineradicable place in the universe
Alone in endless, stillness, calmness of the universe
Life after death
Spirit or soul
Is there in every culture.
The great cycle of life and death
Seem as vague and hazy like a dream.
Darkness would wrap itself around me,
filling me with a veritable ecstasy of emptiness
If when I die I will live again,
And some thinking, feeling,
Remembering part of me will continue.
Despite the ancient and worldwide
Cultural traditions that cultural beliefs
They mystify and bring relief
Asserting an afterlife, immortality
In ancient Mesopotamia, Egyptians, Hebrew, Greek, Romans, Old testament, The Gita, Chinese, Tantric, Anglo-Saxon
It feels like a formation of beliefs, wishful thinking,
If it was really true no matter what
And I can trust my gut
The door is slammed shut
I could satisfy my deep interests and ambitions
Only if I had proof the authenticity of the traditions
But if it's an endless dreamless sleep
A shadow so deep;
My passion would remain a forlorn hope
Fulfillment of my wishes has no scope
This perspective has given me
A little extra motivation to stay alive!
Thrive and survive
In our vulnerability,
Looking Death in the eye
Don't make me breathe a sigh
Being grateful for every day
The brief but magnificent opportunity
Life grants
Life is but a momentary glimpse of the wonder of this astonishing universe
Not a dream or spiritual fantasy
Karma says if you want happiness in life, never be an owner of love be a donor of love
Woman who works in a slaughterhouse.Who is somebody's wedded Spouse,--Threatens to drop dead the very moment.I feel Life is one magical moment.Where dreams are woven.Keeping eyes open.Exploring each moment. Feeling the thrill of the moment
Why did I get Covid 19 despite voluntary isolation?
Taking mask-wearing and social distancing lightly. Pass on infections to others harshly
Tests are a preventive measure and only effective as long as you put in place other security measures
"Holy cow!" I could see the conspiracy,human tyranny, defendant spouse.
C-reactive protein and the D dimer rose defending the demoniac strength, We are no longer in same wavelength
Commenting on my daily titanic struggle.
I would define my life has been eaten up by the family trait lust…
There's a difference between frustration and determination
It's all in your mind Seek pluck till you find,I am gonna look for hope till my eyes go blind.
The immune system not having the capacity to distinguish between a new organ transplanted to save life destroys it instead which results in rejection.
The side effect in question? These medications may increase your risk of infection.
This almost implies that if you are taking some of these medications you will fall ill every time you pass by someone with the sniffles along with the big stuff, like the flu or tuberculosis. Or end up with Covid like me.
Neuroendocrine tumour is a part of vHL or other sporadic A 54-year-old actor gets neuroendocrine tumours and the nation gets stunned, staggers and cries for him. Waves of worry in every person. He was an entertainer, actor.
A 41 year old woman who is struggling with several cancers and started after father perished with no idea how to get food the next day pulled herself up from the condition and is now back to starting point again.
Making an earnest appeal to the government I was once a child and have been suffering since 3 years old. Government acknowledged then rejected because children need to live. Oh! God amongst my all troubles why didn't you give me the aging ailment of Benjamin Button. I would have been back to 3 years old and with the support of the Government enjoying life with Mum.
Doctors opine, and one cannot help but agree, that in some parts of the genetic cancer several victims of the syndrome avoid detection entirely, while others,battle throughout life.
Oftentimes the victims are reluctant to seek medical help, which is helpful as well as harmful.
“Chromosomes too are shuffled into oblivion, like hands of cards soon after they are dealt. But the cards themselves survive the shuffling. The cards are the genes. The genes are not destroyed by crossing-over, they merely change partners and march on. Of course they march on. That is their business. They are the replicators and we are their survival machines. When we have served our purpose we are cast aside. But genes are denizens of geological time: genes are forever.”
Genetic disorders exploits the fundamental logic of evolution unlike any other illness. If we, as a species, are the ultimate product of Darwinian selection, then so too is the disease which lurks inside me and I’m a freak of evolution. Evolutionary diseases can’t yet be undone, but some do have treatment to provide longevity.
To tackle the crisis there was a doubtful sanction or approval of support.
Then it entirely hypothetical, imaginary form to someone who then wrote a brief description of it. If this description of rare disease.
If we have luck enough to get the decision makers' children sick genetically being unable to assist them, let alone cure poor children she'll be desperate for a cure.
Even what remains discredited and truly eccentric will help save more lives than any pill or conventional medical guide. Or a conventional doctor, for that matter.
Could well mean that government funding for a cure will soon be at an end, support nonetheless for obscure and discredited diseases
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