Life is like a rose, when it blooms it gives you joy but it has thorns: struggles to be overcome to enjoy the beauty.
Life is so beautiful you don't get tired of living. At times life gets smarter and funnier than you but I feel so lucky even if life hurts me I love this life.
I want a storybook-like ending in my life.
Keeping in mind I was brought up amidst books and am a bibliophile, and there are too many books to read that one lifetime is short even if you live a thousand years.
It's an idyllic life with invisible friends on the pages. Time holds us and moulds us. Mahakal controls the universe.
Sometimes people don't admit that they are wrong because they are too prideful, stuck with their own beliefs but unless you admit you are wrong how do you expect to learn more in a new aspect if you think you are permanently right? Let go of the devilish ego which stops you to approach life with an open mind.
Books are truth, so is life-- a wonderful illuminating journey. Do I have anything besides it?
If in the middle of the night sometimes I think of wherefores, maybes and perhapses, ergo I decided to leave back those what-ifs and could-have-beens.
I have stopped caring about what others think or say about me. I don't need people's approval because life for me is too short to hold me back. I am not a cretin, I know more than I say, think more than I speak, and notice more than you realize. My thinking apparatus is perfectly functional. All I want is my tangible trace after I take off.
I see the positive side of all things, never feared any challenge and faced head-on because going through worse I have learnt to live with my head up high.
Sometimes I repeatedly hear from people " Is it benign or cancer? It could have been worse!" I must say you don't understand until you are in the middle of it.
Benign tumours and their treatment are just as difficult as cancerous tumours. I am ready to see how they'd react to the skull-shattering pain.
How would they react when a fellow looking at the picture of the scan of numerous lesions scattered throughout my brain remarks,
" You have more tumours in the brain than people have lice in hair.''
I have never encountered people with such powerful monsters popularly known as leptomeningeal hemangioblastomas.
Would anyone stand with a trophy not knowing what the outcome will be?
In the folklore of science, there's very little information. A healthy life! Ha!Ha!Ha! It's out of the question! I am destined for a never-ending battle for survival.
Light-hearted promises and hollow assurances have made it a failure to dispel my annoyance. Life simmer with unwavering clarity.
Wild with enthusiasm made me fly off the handle. I am never hostile, I am bold to stand against any sort of injustice or opinion or deed which is not morally good. There's no 'yelling’ and ‘melancholy’ madness.
My anger is like the basic human emotions, as elemental as happiness, sadness, anxiety, or disgust. These emotions are related to my basic survival and were honed over the course of the history of my life. Anger is related to the “fight, flight, or freeze” response of the sympathetic nervous system; it prepares humans to fight. But fighting doesn't necessarily mean throwing punches; it might propel communities to combat injustice trying to change laws and thoughts.
These rare tumours behave like ghosts of survival-endowed cells leaked from the original tumour, you can't detect them in their infancy but as they grow producing symptoms their luminosity is captured in a Gallium Dotanoc scan and you feel a haunted sense of doom. Inferno of noise is always there in the ears, a battle of nerves is the result.
Folks blinked, understood nothing, nothing about anything because it is the absurdest thing that they have heard. When you can't gulp down food a flash of insight that had suddenly enlightened me swallowed up and sized me up. I became the little mermaid without any tears and changing voice also as the witch said " Every step she took was as the witch had said it would be; she felt as if she were treading upon the points of needles or sharp knives.", in my case legs are getting weaker and weaker. Sometimes the diabolical torment makes me throw up. But do you think a profound sense of despair comes over me, and I feel a sob rising in my throat? I feel life is drool-worthy. The knives piercing my throat and I throwing up, Mum and me are slowly getting accustomed to it like my partial vision loss and being blind with the right eye.
I am alive not just breathing and my thoughts move on with extra enthusiasm and energy and I concocted a cerebral haunting ghost story and my passion for detection made me write the adventures of Mum and Princess, more life-like than any tale of detection ever written. Both are the finest pacy thrillers. Everything I write is quietly, honestly imbued with a sense of my very own individuality.
They say eyes are windows to the soul. But there's another view required of the world out there and other eyes to give justice. When people betray their own people.
Live intensely in today, and avoid killjoys like the plague. Not knowing what tomorrow holds is a pleasant feeling.
Empathy with humanity in general and zeal of rare patients in a society that bristles with inequality, the suffering of the soul in no way can be replaced, in no way with physical agony brought about by rare disease can get relief unless the common watch over and take care.
After surviving a life-threatening surgery when the doctor said "Everything is in God's hands" I always felt rewarding and felt good, woohoo! "How many times does this make?" Feels like Tom Cruise's rock-climbing. Life is a vast and big cliff and climbs alone enjoying it. Once you slip at a precarious moment, slide and almost fall off it doesn't mean "the end" of your story. It's like Watson writing about Sherlock Holmes and Moriarty falling in the waterfalls and Holmes sneaking into the room and adding a question mark.
My whole life stands before my eyes like a simmering picture with hypnotic clarity. How I fought the insufferable on the fringes of need and poverty. Mum and I think on the same wavelength without a defeatist attitude.
Do you ever feel like changing, that isn't right? A desire to evolve? I don't get any hare-brained ideas after all the years of reading books, gaining knowledge. I get fits of inspiration. The essence of genesis is towards becoming but not at a crawling pace. My brand of solace is yearning to know more before my time passes out and I give up to the inevitable. I crave knowledge.
There's nothing more surprising that lots of people get by without reading books. Being a bookworm people's ability not to read is something I can't fathom. I not only read books for entertainment but also science papers to know more about my ailments.
I don't live in netherland, neither am I brainwashed nor can ever be. I daresay I am not lowly cur with manipulative behaviour or dirty tricks to deny the life of someone or steal someone's efforts terminated in pain.
Heartless devils cut down forests and the birds nesting in the branches of the trees fly away to safety but still have an attachment to their own home and abhor the cruelty.
Because of the disappearance of the forests, they think unicorns will disappear from the planet and they won't have to feed them any.
"Genetic disorders are not so much a disease as a phenomenon, the result of a basic evolutionary compromise. As a body lives and grows, its cells are constantly dividing, copying their DNA — this vast genetic library — and bequeathing it to the daughter cells. They in turn pass it to their own progeny: copies of copies of copies. Along the way, errors inevitably occur. Most are random misprints.
Over the aeons, cells have developed complex mechanisms that identify and correct many of the glitches. But the process is not perfect, nor can it ever be. Mutations are the engine of evolution. Without them, we never would have evolved. The trade-off is that every so often a certain combination will give an individual cell too much power. It begins to evolve independently of the rest of the body. Like a new species thriving in an ecosystem. For that there can be no easy fix."- Does the import sink in that rare diseases requiring exigent action.
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