Saturday, June 20, 2020

But it's the truth even if it didn't happen





Life is a game of chance;

Granted once;


Grow and live vibrantly not in a trance,

Soul dance​,

Immense will billow like a towering tsunami;

Summon up the courage to live life once. 


Supercalifragilisticexpialidocious! 

Life is so beautiful and precious!


I experienced horrors that would give most people nightmares for life but the thing is if you face serious issues from a younger age you don't cringe inside or give up on life. The older you get without ever having a real problem you don't know how to handle it. Starting early gives you a perspective if you don't die first.


The name of my disease sounds euphoric and when you start explaining it resembles deadly babble where the prognosis is like a psychic scream. 


It's like Jerome. K Jerome said "I sat and pondered. I thought what an interesting case I must be from a medical point of view, what an acquisition I should be to a class! Students would have no need to “walk the hospitals,  " If they had me. I was a hospital in myself. All they need do would be to walk round me, and, after that, take their diploma. " in his novel "Three men in a boat."


After battling countless surgeries, I can understand the value of human life and can feel the consequences of the moments that people lose whining which will never come back. No matter how much we wish to go back and relive an event or a happy moment or eradicate a sad moment that is never going to happen. So, live at this moment and don’t lose it. Treasure every moment as if they were your last.


I love Ken Kessy's words " But it's the truth even if it didn't happen". However, I have a lack of a vital emotion, fear which made me survive several life-threatening surgeries with a smile on my face when Doctors said: " Everything is in God's hands".


Multi-drug resistant tuberculosis made my life unbearably agonizing for me but I never shed tears or complained about the pain and discomfort because that's the way I am. 


"All my life I had to battle and struggle against things"

She remembered with horrified revulsion

With congested brain but plenty of imagination

She fought the demon with Mum’s inspiration

Faced the momentous occasion

Putting her faith on Divine Providence

God's intervention

Even in unthinkable pain

She does not complain

She needs more encouragement and support to win all wars with determination, my mum had thought in her weakest moment, 

Her cogs and circuits malfunctioned

She fought the war unlamented

She faces life uncomplaining, contented

A very long time ago, a lifetime before the present

A dragon came to blaze up her life, push her to perdition

She traversed Via Dolorosa holding tight

Inspired by glorious Mum's might

She is a warrior, yet something human and living too. 

That deserves its happiness like me or you.


I don't know how to cry but when Trigeminal Neuralgia attacked me


Irrepressible pain

Gloom hysteria

I am Trigeminal Neuralgia

Daggers stab eyes 

Shedding tear

Sending a wave of fear ☠️


He taught me to cry but then with mum's support I controlled myself. Mum's affection and care act as restorative always.

Battle with Trigeminal Neuralgia


A bolt of pain shot up the face,

Reached the farthest limit,

With disdain without grace,

Sneaking into the throat,

As quiet as a mouse

Huddling behind the ear,

Pulsating in the mouth,

Strange tic

Distorting face so quick, 

Drilling teeth, eye swelling,

Making it tormented house,

 A bedistressful dwelling--

Jumping off, crossing sides

Jumps and attacks and hides

It's a race against time,

A gloomy struggle all-day

As the predicament shook me to the core

It's a dreadful dream, a nightmare

That I battle every day and more

Heat or cold, the baleful row

Can't thrust me into diabolical shadow,

Behind the darkness of the scare,

Is the sparkling cloud,

And the sun shining bright and so proud. 🌤


Life for me is a challenge to be met with courage. Life is a game of skill with an element of chance. Life comes to a standstill if you give up hope. The power of volition originating from the energy of creation residing inside us made us move onward in small steps and little by little without thinking about the future or what may come tomorrow we advanced without stopping, without crying, thus like every life from desiring to live making tough decisions I fought on. 


I am not a  woman who views the world with disappointed eyes, who subconsciously feels she has missed something which means in the point of fact she has missed everything. I love life and want to live at full throttle and jumped ahead with zeal. Not being a quitter I do a lot of things with gusto.


I still dare to change the things I can,

I resuscitate ceaselessly,

I wage wars with verve

In a point of no return

Yes, a Warrior Princess I am. 🌬



Like Asterix and Obelix travelling the untrodden track, I jest with Mum about the crazy Romans we met in our lives.


I make my own roads, 

Every stone on the way has a significance, 

If I trip I gain more experience, 

My remembrance

Helps me to use my diligence, 

To make my road better. 

To tackle my sorrow, 

So that my eyes don't get wetter, 

Thus building a brighter tomorrow. 

Without a hurt, without a tear, 

Without pain, without fear, 

Without despair, 

Where everyone will care for each other, 

Angst and pain will disappear. 

Everyone will love one another. 




A Warrior fights the battle of life ---all its dreadful possibilities without a whit of fear without thinking that it’s unfair. Before we are inevitably visited by death and thrust to total chaos a warrior’s mind gracefully dances to the rhythm of the music of creation and life. Thus, A Warrior Dies Dancing, That’s Who I Am… The upshot is life belongs to us but we belong to death meanwhile dance away the time you get.


Life should be lived in every moment, smiling on the face of adversity because we don't know when the moment of death would come. Life has to be wonderful and startling so that you are remembered for your hopefulness, not for your funk.


 I have my very own ishta devata(favourite God) to whom I pray from inside my room every day and he provides the strength to fight. I have fought through many wars but I have never abandoned science. I have always treasured every moment as if this was my last and fought on. 


When you arise in the morning, think of what a precious privilege it is to be alive to breathe, to think, to enjoy being alive so please don't keep wringing your hands.


The happiness of our heart is the thing to be considered before anything else and I am sure it would turn out wonderfully in the end.



1 comment:

  1. Beautifully written right from the heart and soul:) Payel. Your writings def need to be promoted and supported, is there any one who is listening? Take care. Love. Unc

    ReplyDelete