Wednesday, February 17, 2021

Mea Culpa

To pin down meaning to life is a piece of cake compared to actually being alive, not just breathing. I was born with an intense sense of being alive.

 To begin with, I always felt fringed by my narcissist relatives who had less than average intelligence. I had a stifling awareness of the silly-willy fringe stuff.


Their affection was meaningless and empty, as empty as their talk.


Mum and I still love one another. She is my motivation to fighting, which doesn't necessarily mean throwing punches; it might stir me up and inspire me to combat unusual diseases unknown to humankind and my strife is intense, grave, tireless where you don't have to worry only about healing because recovery is a tough process that takes time and patience leaving scars behind but you have to bother about financial demands to get a proper diagnosis and the desired treatment and surveillance.

Initially, I underwent a few surgeries but ultimately was diagnosed with a disease that is not terminal but will only get worse. Strange oddments of fate changed it into inevitable doom.


The unusual birth of the eye-catching child of fond parents after a miscarriage and foetus getting problems while in the womb, were lost in the thought that behind the outer shell there might lurk some sickness never known to humanity and the ill-fated, ill-starred child would have to endure the worst in all walks of life and face countless challenges my parents never thought of that.


From my early childhood, Mum became a vital and integral part of my life. She is the diamond of my life. I have a little mother, I call her Mum. She is the magic charm of my gloomy and solitary life. She had always made me feel so special.

Through all hardships and forfeitures of every kind--supported by the one thought in every facet of life. When life is sheer willpower hanging by two or three threads, she tells of the wondrous things in my rare and strange life and we together have journeys and magnificent adventures mostly making rounds of hospitals.


Although I am not writing this post for cathartic purposes, I would not shy away from saying that being his granddaughter for the treatment of my rare disease I have to seek help from people who are always uncertain, thus deferring the necessary treatment of my eccentric disease.


 My brain changed in chemical composition when I understood the frightfulness and the oddity of my nasty lingering illness and its larger economic implications.


 This all happened, and we are put in such situations because of my sly and foxy uncle and his tricky strategies.


 Grandpa was a well-informed person but sometimes he had to give in to those dark moldy souls who inhabited his house because he was invalided by his unknown, undiagnosed disease and was dependent on them. From the waist onwards, his torso had shriveled up and that portion was almost always covered by a white sheet. 


Perhaps if he was alive, he could see to it that I wouldn't be subjected to such injustice now with an unrequited, aching, and yearning for a simpler and happier time. 


Grandpa was a fount of wisdom and knowledge and I desire to be like him. I called him ‘dadu’. In fact, he was an embodiment of virtuosity and versatility. Many well-known individuals and businessmen like Modi visited him at his own house for his counsel and their generations are still alive. 


As I will until I unfold the story of my life at the right pace and precision so that you can judge yourself from each slice of life, I present to you.


To wonder too openly, or intensely, Grandpa could not get me established by leaving me something to better my life sounds like a peculiar, ill-fated, and unintentionally comedic pastime because of the ruthless scheming manipulator. You might laugh off but don't reject it outright, possibility can become fact...if he has left, but that shady uncle whom I consider to be a slayer and destroyer having marked disregard for others’ lives and feelings--- tempted by the easy way to become rich is manipulating it by his connivance. He is the youngest son of my grandparents. But I must say here that my father was a naive man of which fact I presume his siblings had taken advantage.



 He is always eager about money matters even after a decade of deceiving us when he is rolling in wealth, he doesn’t want to part with it, money is always a welcome addition to his bank account. But can he take all of it with him to the afterlife--- now that he has had recent bypass surgeries of the old ticker but how long will it keep ticking? Tick-tock, click- clock says the clock ineluctable slumber is hurrying.


What if, I wonder what if Grandpa had provided me with a house and money for my treatment expenses; probably we wouldn't have to ask for help or live in these shabby, lousy houses leading a nomadic life hounded by landlords to the effect that we would have nothing to worry about, no reason to panic about or be hysterical.



 But no such thing has happened, nothing was left for us or even if we were provided by grandpa it was taken by immoral and illegal means and I can't get it in my lifetime, my fate will remain riches to rags until my last breath. Mum and I didn't panic, nor did we go hysterical and we lived in lousy houses in the oddest of places hounded by landlords, the consequence of which is that we had to change our houses seven times. We managed to extricate ourselves to some extent, from the difficulties presented to us and took the bull by the horns. 



When I was little I used to play around the wheelchair of Grandpa while he sat with his thin shriveled legs in the verandah. He used to look at me affectionately and was concerned about my illness. Later when we watched television in his room, he used to ask my father.


Even after more than a decade of deceiving us when he is rolling in wealth, he doesn’t want to part with it, money is always a welcome addition to his bank account. But can he take all of it with him to the afterlife--- now that he has had recent surgery of the old ticker but how long will it keep ticking? He did a scam in India steamship and resigned overnight. He added more and more to his bank account in similar strategies. Ultimately became Bursar of the St.Thomas school and took payoffs by making rich students with terrible marks admission to good Christian schools.



When I was a little girl I used to play around the wheelchair of Grandpa while he sat with his thin shriveled legs in the verandah. He used to look at me affectionately and was concerned about my illness. Later when we watched television in his room, he used to ask my father


I heard from my father that just seven days before his death Grandpa suddenly stopped communicating with other people in the house and on the day before his death my mother's eldest brother came to visit us. That was the only time he spoke with anyone in a matter of seven days. He called my father while he was returning from his office and said that he felt extremely sad that he had not been able to do something worthwhile for him and amongst his children, he, the innocent and upright one would suffer after his death. My father hushed him down and said not to worry for him. He believed grandpa has already provided us with the wherewithal for survival and he never coveted the rich, luxurious lifestyle of his siblings or cousins. His only desire was that after his children get settled, he would lead the life of a hermit in Rishikesh beside the holy Ganges. 



The next day, early in the morning grandpa had a cardiac arrest. The two elder sons ran out of the house to see if the doctor they had called was coming or was held up somewhere. We were little kids back then and even our mother left us alone and was going to and from the verandah attached to Grandpa's room, pacing like a headless chicken with anxiety and apprehension. While waiting impatiently for the doctor and wondering about his delay, my mother saw the youngest son instead of going out with his brothers, the sinful one was rifling through Grandpa's locker and taking the papers out of it. Mum was amazed and disgusted at----- 


“How heartless and unconcerned a man can be! His father is gasping for his last breath just beside him on the bed and he is doing nothing just going through the papers and removing them from his locker with his back turned towards him! A splendid example of a son he certainly is!” 


Then she left her kids and ran out in apprehension.


But that's the way he was, and he still is. He had been too certain that Grandpa would die, and everybody would be too concerned about his memories while he would slip out with his last testament and cheat the others. My father devotedly loved all his siblings equally and only the day before his departure to the other world he confided in me.


 When everyone was grieving his death the fox was seen sorting through the papers in his elder brother, the freedom fighter's room.


As we are aware, I believe karma would get them in the end. It’s their deeds of action. You always pay for your deed. Karma simmers and surges around you but gets you in the end. When deception fills the air, the truth lies below the deceptive layers your payback runs after you and can devastate and destroy you. So, being good and kind and helping people will destroy the negative karma. You never know the consequences that little deeds can bring to yourself. Our actions always come back to us. 


Grandma was a brainless, mean-minded prejudiced woman who could easily be brainwashed. She had a big ego and an inflated sense of self and thought herself above everyone because her husband had money and means. She believed in racism and wouldn't let us call the servants ‘Mashi’ or ‘auntie’ or taunted people for their shortcomings like calling the neighbor barren because she didn't have any kids. She never praised anyone other than her daughter and youngest son. She was always partial towards her youngest son and thought him to be very clever. Clever he was but in a crafty way. It is because of those shrewd, wily, and cunning ways of his that I am going through all this agony, hoping that in my life story like in all fiction the good will end happily and the bad unhappily. 


I could never infer the whole nature of the sly lustful uncle's strangely oneupmanship from the parts I could see then but as I said life alerted us many times, but we never understood. My father’s obtuseness was not your fault. He realized it all when he was in his early sixties, just a few days before his departure from this world.


The  uncle was married after Grandpa's death to a woman puffed up with self-importance. She is a worthy better half of her conspiring husband, thinking her to be the undisputed queen of the elites of the society


Both were adept in the art or process of gaining the advantage in situations by means of crafty or ingenious ploys "Wherever you find a great man, you will find a great mother or a great wife standing behind him"--- in this case, was the wife.


Hearing his story when I was struggling with death, I had mental indigestion. When I was afflicted, I had a mutual understanding between my father, whom I called ’Baba’ that he would tell me the truth even if it was very disturbing. He said he had never got any affection from his own mother and called me ‘Ma’ and told me his life story which somewhat consoled him. We were walking in front of the India gate and he was confiding in me with tears in his eyes and it was a windy day. It seemed like the wind cried in accord. He said he never wanted more than what he deserved and that too when the situations were such that to save his own daughter's life, he needed money. He only asked for what his father had left for him. He was repeatedly sending his pleas to his mother, but it was all unheard by her who was influenced by his youngest brother's ploys. He, who had never asked for any assistance with his finances wandered like a lone cloud in a wistful blue sky from door to door explaining his situation and asking for help. Sometimes they talked the talk but didn't walk the walk which weighed on his soul. His soul couldn't take the weight of the chameleons thronging and souring the reality of his life and he left us within a day after telling me all these thoughts about his family and life. I wondered why, why didn't he do something? Why did he tolerate everything wrong with stoic dignity? It was his mother who was the epicenter of grimness in his life. His small step could have changed the course of life's events and who knows I might not need to face death time and again.




His blinded eyes refused to scan

The sorrow will cause lunacy of plan

Life became meaningless


Fate and a feeble will to survive

Remembered everything shimmeringly

Told his sad tale darting around the monument tearingly


An unfortunate combination of reduced finances

Under most dreadful circumstances 


And thus his further tidings told

Life was a building block of fantasy

The emptiness of dream, pain, and ecstasy

Beginning, middle end of the story

His trembling voice at last controlled,

Mea Culpa said he.

Calamity of horror beating wings of death

Next day he took his last breath





Tuesday, February 16, 2021

Spring Goddess

 

Winter had died peacefully in its sleep

Again spring came  with cheery heat

Returning made the year complete


As nature spring to life

I start my endless strife.



From mind wisdom and judgment spring

Healing specialist ready for holy service to see my life improving 

To ward off the swimming bubbles

To put me out of troubles 



Those with a heart help and save

Help all beings strong and brave


With power, passion, allure, charm

I dedicate my suffering to Goddess in my emotional prayer

To aid the war, suffering, more than all!!!

It has been a very very long haul


Goddess spake, " I am with you always there 

To protect against any beast,

With dignity, with care in one form or other,

I protect thou my child for seasons, nights,

Days, year's, months, and hours

I stand with you in every fight


 I tend to your utterances with loving care,

But your thou glorious one, protect thy mother from neglect

She deserves a lot of respect

Obedience, love, and honor shall pay

Her antique hair has turned grey

Yet virtue, magnanimity, heroism she portray


For thine aged mother feel thy bliss, joy, and pain

She weeps floods of tears not just because Father was slain

Her pain sorrow and woes

Will not just go with the demolition of demon foes

She basks in your glory bright

That's her might in your blight

When you like a warrior grasp your bow

Her bosom with warmth, and affection glow

 

Her tears turned into a jewel

Will pierce your head to kill the swimming bubbles so cruel

Sting them and traveling and gaining the power to make them vamoose 

Clinging against the lumps into a point deep into the head try, deduce

Your grief and pain will be dead

Into the ground will they spread


The demon fiend in his guise

To discern the evil-bred's advice

He was not skilled

Your Father with the counsel he gave

Who lent his gracious ear and in joy he sway and got killed



Autumn as a soft-spoken executrix was locking life up safely

Spring came to claim it gamely

It's time his spirits to rise

To rule the castle under the skies

From naive fear and age and sickness freed,

Through the three worlds with wings he shall speed.

He has developed warlike skill

He will claim that demon to pay

And he has attention to thy illness with sweet words still

His high thoughts and message I bear

Lend me your ear

His cares of worldly cares he still recalls

His deepest soul still enthralls

By The adventures of Mum and Princess

From the world he is expelled

Better than any soul, yet not really dead

He is in a realm where he has will to take away your distress



With these words Spring Goddess does slowly fade away and ceased.

I got up from my sleep and saw a blue streak slowly decreased.



Monday, February 15, 2021

Story of my struggle with multiple rare diseases

 




 I am going for an unexplored technology for the treatment of my brain tumors about which you will find at the end of the post.



Everyone has the right to a standard of living adequate 

for the health and well- being of himself and of his 

family, including . . . medical care. . . .

 (Universal Declaration of Human Rights, 

United Nations 1948)


There are between 5,000 and 7,000 rare diseases and the number of patients suffering from them is estimated to be more than 50 million in the US and Europe. Before the orphan drug legislation enacted in the US in 1983, there was limited interest from the pharmaceutical industry to develop a treatment for very small patient groups, owing to the fact that similar levels of investment are needed from a pharmaceutical company to bring a drug to market for both small and large patient groups.


Over 300 million people are living with one or more of over 6,000 identified rare diseases around the world, each supported by family, friends, and a team of carers that make up the rare disease community.



Each rare disease may only affect a handful of people, scattered around the world, but taken together the number of people directly affected is equivalent to the population of the world’s third-largest country.



Rare diseases currently affect 3.5% - 5.9% of the worldwide population.



72% of rare diseases are genetic whilst others are the result of infections (bacterial or viral), allergies, and environmental causes, or are degenerative and proliferative.



70% of those genetic rare diseases start in childhood.



A disease is defined as rare in Europe when it affects fewer than 1 in 2,000 people.


~rarediseaseday.org.


I have a rare disease called VHL or von Hippel-Lindau--this is a cancer-suppressing gene and those people who have VHL disease have a mutation, turning you into a tumor producing factory.


I don't think I have to explain mutation because the virus causing the pandemic is also composed of genetic material and it is mutating constantly.





In my case, blood-filled tumors form in up to 10 organs of the body.


The only treatment is the removal of tumors, irradiation, and monitoring but unfortunately, multiple tumors formed in the liver which compressed and displaced vital vessels and I had a liver transplant leading to turning off of the immune system.





Steroids and anti-rejection medications target T-cells, which are lymphocytes that control the immune response.

The anti-rejection protocol generally is just a shot to your system to suppress everything.

 This almost implies that if you are taking some of these medications you will fall ill every time you pass by someone with the sniffles along with the big stuff, like the flu or tuberculosis. 

Yes, I was diagnosed with tuberculosis which was later found to be Multi-drug-resistant Tuberculosis.

Fun ingredient of life is not only you get bombs in your lungs wherein you gotta lie low hoping they won't go off; they can be diffused by a squad with proper knowledge. Looking forth to sunshine so that the landmines (leptomeningeal hemangioblastomas) don't blow me off with an utter BOOM! 








What is an orphan drug?



"Orphan drugs" are medicinal products intended for diagnosis, prevention or treatment of life-threatening or very serious diseases or disorders that are rare.


An orphan drug is a pharmaceutical agent developed to treat medical conditions which, because they are so rare, would not be profitable to produce without government assistance. The conditions are referred to as orphan diseases.


Jan. 9, 2006 — The FDA has approved orphan drug status for mycophenolate mofetil (a bottle is very expensive in India and you can use it for 60 days then you have to throw it away)

Mycophenolate is approved by the FDA and other regulatory authorities worldwide for use in conjunction with cyclosporine( Neoral which I had to quit because of gingival hyperplasia) and corticosteroids which caused posterior subcapsular cataracts….




for the prophylaxis of organ rejection in adult patients receiving allogeneic renal, cardiac, or hepatic transplant. In some countries, it is also approved for use in pediatric kidney transplantation.


Liver transplantation is an important treatment option for selected patients with non-resectable multiple tumors.



When multiple tumors formed in the liver which compressed and displaced vital vessels and I had a liver transplant.






Sirolimus is a natural macrocyclic lactone(are products or chemical derivatives of soil microorganisms belonging to the genus Streptomyces)produced by the bacterium Streptomyces hygroscopicus, with immunosuppressant properties. In cells, sirolimus generates an immunosuppressive complex that binds to and inhibits the activation of the mammalian Target Of Rapamycin (mTOR), a key regulatory kinase( Kinase, an enzyme that adds phosphate groups (PO43−) to other molecules. A large number of kinases exist—the human genome contains at least 500 kinase-encoding genes.). This results in inhibition of T lymphocyte activation and proliferation that occurs in response to antigenic and cytokine stimulation and inhibition of antibody production. 


Sirolimus can prevent angiogenesis by interfering with vascular endothelium growth factor (VEGF)‐mediated pathways in endothelial cells, thus limiting the growth of tumors,and also impacts established tumors, by inducing extensive microthrombi and so inhibiting tumor growth.


Vascular endothelial growth factor (VEGF) is a potent angiogenic factor and was first described as an essential growth factor for vascular endothelial cells. VEGF is up-regulated in many tumors and its contribution to tumor angiogenesis is well defined.


Sirolimus is produced by the bacterium Streptomyces hygroscopicus and was isolated for the first time in 1972 by Surendra Nath Sehgal and colleagues from samples of Streptomyces hygroscopicus found on Easter Island. The compound was originally named rapamycin after the native name of the island, Rapa Nui. Sirolimus was initially developed as an antifungal agent. However, this use was abandoned when it was discovered to have potent immunosuppressive and antiproliferative properties.


I asked Dr.Sanjiv Saigal, " Why am I getting tumors despite taking Sirolimus?" His reply, "Because it is given at a lower dose only for a liver transplant." But I shouldn't try increasing my dose without his advice.





In India, these drugs happen to be expensive and patients who run on a mere Rs 7000 as Mum's pension find it hard to arrange.


In the European Union (EU), rare diseases (RD) are officially defined as disorders affecting no more than 5 per 10,000 persons. These are life-threatening or chronically debilitating diseases with a low prevalence and a high level of complexity.



In India, patient organizations first became involved in Rare Disease Day in 2010. Most of the population are unaware and they are not treated with equality



Where's the equality here? Why is there a distinction between rare diseases? 


Our country doesn't follow the Constitution?





India is a secular federal republic governed in a democratic parliamentary system. The preamble of our Constitution states,

WE, THE PEOPLE OF INDIA, having solemnly resolved to constitute India into a SOVEREIGN SOCIALIST SECULAR DEMOCRATIC REPUBLIC and to secure to all its citizens


JUSTICE, social, economic and political;


LIBERTY of thought, expression, belief, faith and worship;


EQUALITY of status and of opportunity;


and to promote among them all FRATERNITY


assuring the dignity of the individual and the unity and integrity of the Nation.


India seeks social, economic and political justice to ensure equality to its citizens.



We often hear about activists or common people fighting for their human rights. But what are these rights? And who gave us these rights? Why do people have to fight for their rights? 




Fundamental Rights are considered as basic human rights of all citizens, irrespective of their gender, caste, religion or creed. etc. These sections are the vital elements of the constitution, which was developed between 1947 and 1949 by the Constitution of India.



India seeks social, economic and political justice to ensure equality to its citizens.



Right to Equality ensures equal rights for all the citizens.


Equality means the absence of privileges or discrimination against any section of society. 


The Preamble provides for equality of status and opportunity to all the people of the country.


Then why is the government discriminating on the basis of disease, even a rare disease?



Article 21 says that no one shall be deprived of life and personal liberty. “Right to life” included the right to lead a healthy life so as to enjoy all faculties of the human body in their prime conditions.




 Here I not only faced challenges in my childhood days because I never looked like I was sick, but I also looked cheerful, with big observant eyes filled with curiosity but everything was wrong internally. 



When the money-minded, relatives ditched us after my father perished, Mum with her neat and orderly mind kept her struggle with survival moving forward.


 The early years were toughest: we had no money and no idea what to eat the next day. The relations with a twisted mentality are still fighting and trying to swat me out of the way.



The challenge was thrown down our way has been quite an adventure, setbacks with hard work and luck involved.



Going down memory lane, how I survived so many surgeries including my landmark liver transplant, kidney cancer, MDR TB, and obviously fighting brain tumors more than folksies have lice on their head, is indeed a marvel, a wonder indicating God's intervention. As mountains rose on my way it couldn't startle and I didn't quiver with fear.


I live in a realm where with Mum's support I can move the mountains with determination and resolve.


I have parathyroid insufficiency or HypoPara causing Hypocalcemia and attacks of tetany.



Detecting and treating the condition of leptomeningeal hemangioblastoma without delay seems to help survival, though the number of patients analyzed is small. Patients may have other underlying health issues that may affect the data.


Rare disease patients and caregivers often shoulder a considerable burden for their disease and find it necessary to educate physicians about their condition and serve as becoming their own advocates.


The complexity of their existence, the trials of maladies forced me to struggle to live.


The will to live is an unstoppable thing. Most people live only when they are about to die. 




I am not after pain medicines that will make me gain weight, damage my transplanted liver and whatever I have left of my left kidney but I am after a treatment that will make a big difference in my life. Doctor's response is a shrug.







If you don't have enough knowledge you can't survive such nefarious tumors. 


Once you go for surgery the blood-filled tumors would bleed spreading tumor cells throughout the brain and spine and they, in turn, would travel with the fluid inside the brain which acts as a cushion for the brain. There's also a risk of bacterial meningitis due to the absence of an immune system.



I was told I have 3-6 months in 2013 after diagnosis... if I had gone for surgery but I was clever not to choose surgery.


I used radiation therapy for stopping the growth or mildly shrinking of the tumors.




I had 2 cyberknife and 2 radiation therapy






 But the 2017 radiation therapy went wrong, my ' little grey cells' are working and I became an author of books













and columnist with Times of India but my white matter was damaged.


As I was exposed to a lot of radiation in the brain, the consequences of which are white matter damage, I got chronic ischemic brain leading to Cerebral ischemia or brain ischemia, and when there isn’t enough blood flow to the brain leading to limited oxygen supply it may lead to the death of brain tissue, or ischemic stroke.



But another thing happened the nerves started getting damaged and then it is assumed that the dislodged have started traveling. 


My 5th nerve has been destroyed. 


Other nerves too look like they are on the path of destruction. We have 12 cranial nerves right inside the neck region. If the tumors in their journey travel to the nerve controlling the lungs or heart, I will take off from the world bidding adieu to all. 





These tumors are extremely vascular. A biopsy would make them bleed resulting in tumor cells spread a stroke.


Entrepreneur and author Melissa Seymour was diagnosed with TN in 2009 and underwent microvascular decompression surgery. It wasn’t successful and having contracted ‘Bacterial Meningitis’ in the hospital.



I have 3-6 months now to beat the nuisance tumors. I need your help.

I already have along with sinus tachycardia.



Perhaps I have glossopharyngeal neuralgia.


Glossopharyngeal neuralgia (GPN) is a somewhat rare condition characterized by severe, fierce episodes of pain localized to the external ear canal, the base of the tongue, the tonsil, or the area beneath the angle of the jaw. This pain is many times confused with Trigeminal Neuralgia and mistreated. It is related to hyperactivity of the glossopharyngeal nerve. GPN is rare compared with TN. The pain affects the sensory areas corresponding to the glossopharyngeal neuralgia with a branch of sensory vagus nerves. GPN consists of spasmodic, momentary, and severe sharp pain in the posterior area of the throat, tonsillar fossa, base of the tongue, ear canal, and areas inferior to the angle of the mandible. Generally, the pain persists for seconds to minutes and is often triggered by chewing, coughing, yawning, talking, and swallowing. Since Glossopharyngeal neuralgia is a relatively rare condition There are various diagnostic and management dilemmas.



Glossopharyngeal neuralgia is believed to be caused by irritation of the ninth cranial nerve, although in most cases, the source of irritation is never found.



The electrons can be made to strike a tungsten target within the head of the accelerator to create a beam of photons (or “X-rays”). These X-ray beams are then directed at the site of cancer. Photons have no charge or mass and can be regarded as small packets of energy. Photons deposit their energy along the entire path that they travel through the body. Therefore, a beam of X-rays irradiates not only the area of the tumor but also the healthy tissue that the beam encounters on its way towards the tumor and beyond the tumor. X-rays used for treating cancer usually do not stop within the body. X-rays travel right through you. On the other hand, proton beam therapy is delivered by larger, much more expensive accelerators called cyclotrons and synchrotrons.




A proton beam directed at a tumor travels in a straight trajectory towards its target, gives off most of its energy at a defined depth called the Bragg peak, and then stops. While X-rays often deposit more energy within the healthy tissues of the body than within the tumor.


I need 40 lakhs for the treatment. I assume you'd help me out. I live with Mum in a rented house. Already my medicines are very costly. I am not afraid of death. Life has to end once you are born but I think of my 68-year-old mother. After her first miscarriage during my birth, there were problems but she wanted me and for 41 years she has cared for me as nobody would.  She is not just my caregiver but my only companion.



Animals care for their offspring for some time and teach them to eat, walk, how to get food or fly. But at one point in time, they leave them to make their way in life but that's why my mother is unique.






"An' why? Because...because I got you to look after me, and you got me to look after you, and that's why." -John Steinbeck



She has no one apart from me. She'll be shattered and I honestly worry about her. Only her care has kept me alive and now the hell will break loose and she won't be able to tolerate it...we have a great bonding... My appeal kindly contribute…



As Uncle Bill told our neighborhood Spidey "With great power comes great responsibility"


 Those with power fill up the ocean I need.